Founded by Sepsis Alliance, National Sepsis Data Trust Initiative (NSDTI) is an independent, consensus-driven, multi-stakeholder initiative to create a National Sepsis Data Trust.
1.7 million Americans are diagnosed with sepsis every year, and 350,000 of those Americans die – more than from prostate cancer, breast cancer, and opioid overdoses combined. For hospitalized patients with sepsis, more than one in five either die in the hospital or are discharged to hospice care. Over one million Americans survive sepsis each year, and many face long recovery times and lasting after-effects, which can include amputations and PTSD. Sepsis also disproportionately impacts those who have historically lacked access to quality healthcare, including some communities of color and individuals experiencing poverty.
In order to combat sepsis, we need information to help us better understand it. We still don’t know why some people develop sepsis and others do not; we don’t have a clear picture on how survivors’ recoveries are progressing; and we don’t know what treatments are working best for which populations. Without good data, we are limited in our ability to improve sepsis care. We can’t manage what we don’t measure.
A National Sepsis Data Trust would change the sepsis data landscape. By relying on existing care processes and data tools, the data trust would connect and make available privacy-protected, sepsis-relevant clinical and demographic information in a centralized, readily available database. This would provide patients, doctors, researchers, and the public the critical information needed to improve sepsis diagnosis, treatment, innovation, and equity.
National Sepsis Data Trust Initiative is pursuing the creation of this nationwide data trust. Interested in learning about our progress? At the bottom of this page, sign up for Sepsis Alliance’s advocacy newsletter and receive occasional NSDTI progress updates!
Thank you to Spectrum and the Society to Improve Diagnosis in Medicine (SIDM) along with our inaugural partners for their contributions to this initiative.
NSDTI Core Team
Director of Advocacy, Sepsis Alliance
Executive Director, NSDTI
President & CEO, Sepsis Alliance
Provider & Advocacy Communications Manager, Sepsis Alliance
Advocacy Research Intern, Sepsis Alliance
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