NSRI in the News

Article: Sepsis: Standard of Care Fails While Novel Meds and Diagnostics Go Unused.
On April 2, 2021, BioSpace published an article that mentioned the need for integrated sepsis data and the National Sepsis Registry Initiative. From the piece: “‘One of the things missing from the sepsis conversation is data. We don’t have the data to advance clinical practice and innovation because it’s siloed among the states (and healthcare systems),’ and the players aren’t talking to one another, Thomas Heymann, president and CEO of the Sepsis Alliance, told the Salon audience.” To read it, click here.

Federal Legislation: Pending Legislation Titled Lulu’s Law
U.S. Representative Mikie Sherrill (D-N.J.) announced her intent to propose legislation to help CDC and states develop the backbone of a National Sepsis Registry. This legislative initiative was announced at the September 16 – 17, 2020 Sepsis Alliance Summit. To view a recording of the discussion, click here.

Panel Discussion: Sepsis Patient Data: From Silos to Solutions
At the Sepsis Alliance Summit on September 16 – 17, 2020, a panel of experts described the value of a National Sepsis Registry, and shared their lessons and insights. To view a recording of the discussion, click here.

OP-ED: A National Sepsis Registry Could Help Defeat Sepsis, a Big Contributor to Covid-19 Deaths
On June 9, 2020, STAT published an op-ed authored by Steve Q. Simpson, Karin H. Molander, and Rommie Duckworth outlining the need for a National Sepsis Registry. To read it, click here.

Sepsis Registry-Related Articles and Resources

California Office of Statewide Health Planning and Development (OSHPD) Sepsis Data Visualization. 
Check out this data visualization from California, which presents patient information on in-hospital and 30-day mortality, length of stay, and charges and payers for severe sepsis hospitalizations. Also examined here are hospital characteristics, including hospital size, location, ownership, and designation as a teaching facility. These data can teach us a lot about sepsis in California—including, for example, that from 2012-2019, the number of severe sepsis cases nearly doubled, while the number of in-hospital deaths for severe sepsis remained the same.
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Using Claims Data for Sepsis:
Sepsis Among Medicare Beneficiaries: 2. The Trajectories of Sepsis, 2012–2018*, Buchman, TG, Simpson, SQ, Sciarretta, KL, et al.  March 2020.
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Sepsis Among Medicare Beneficiaries: 3. The Methods, Models, and Forecasts of Sepsis, 2012–2018*, Buchman, TG, Simpson, SQ, Sciarretta, KL, et al. March 2020.
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Difference Between Clinical and Claims Data:
Incidence and Trends of Sepsis in US Hospitals Using Clinical vs Claims Data, 2009-2014, Rhee, C, Dantes, R, Epstein, L, et al. Sept 2017.
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Comparison of Trends in Sepsis Incidence and Coding Using Administrative Claims Versus Objective Clinical Data, Rhee, C, Murphy, MV, Li, L, et al. Jan 2015.
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The impact of an electronic medical record surveillance program on outcomes for patients with sepsis, McRee, L, Thanavaro, JL, Moore, K, et al. June 2014.
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As the founding sponsor of NSRI, Sepsis Alliance is working to save lives and reduce suffering by improving sepsis awareness and care. Working in all 50 states, Sepsis Alliance is the first and leading sepsis organization in the United States. Its vision is a world in which no one is harmed by sepsis. Learn more about sepsis, including sepsis basics, upcoming events, and how to get involved.

Get in Touch. Get Involved.

We are seeking interested experts and organizations to guide and support creation of a National Sepsis Registry. We have a variety of workgroups and Advisory Boards where we need your help.

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