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NSDTI in the News

Article: Stakeholders Seek to Create National Sepsis Data Trust
JAN 19, 2022 The NSDTI’s goal is “to help researchers, patients, innovators, and caregivers to better understand sepsis, and therefore to improve its diagnosis and treatment,” reports Healthcare Innovation Group in its write-up of the initiative. Read the whole piece here.

Listen: The Health Design Podcast
JAN 16, 2022 Jason Crites, Founder/CEO of Assurance Health Data (AHD)In his interview with The Health Design Podcast, Founder/CEO of Assurance Health Data (AHD) Jason Crites mentions NSDTI as a key example of what’s on the horizon for the health data landscape. “Sepsis Alliance has publicly stated that they have a desire to have a national patient data trust,” he says. “That will allow people to have the data in a safe, secure, patient-first type of mindset.” Listen to the full interview here.

Article: Sepsis: Standard of Care Fails While Novel Meds and Diagnostics Go Unused.
APR 4, 2021 “‘One of the things missing from the sepsis conversation is data. We don’t have the data to advance clinical practice and innovation because it’s siloed among the states (and healthcare systems),’ and the players aren’t talking to one another, Thomas Heymann, president and CEO of the Sepsis Alliance, told the Salon audience.” To read the full write-up in BioSpace, click here.

OP-ED: A National Sepsis Registry Could Help Defeat Sepsis, a Big Contributor to Covid-19 Deaths
JUN 9, 2020 Steve Q. Simpson, Karin H. Molander, and Rommie Duckworth authored a STAT op-ed outlining the need for a national collection of sepsis-relevant data. To read it, click here.

Sepsis Data-Related Studies

Using Claims Data for Sepsis:
Sepsis Among Medicare Beneficiaries: 2. The Trajectories of Sepsis, 2012–2018*, Buchman, TG, Simpson, SQ, Sciarretta, KL, et al.  March 2020.
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Sepsis Among Medicare Beneficiaries: 3. The Methods, Models, and Forecasts of Sepsis, 2012–2018*, Buchman, TG, Simpson, SQ, Sciarretta, KL, et al. March 2020.
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Difference Between Clinical and Claims Data:
Incidence and Trends of Sepsis in US Hospitals Using Clinical vs Claims Data, 2009-2014, Rhee, C, Dantes, R, Epstein, L, et al. Sept 2017.
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Comparison of Trends in Sepsis Incidence and Coding Using Administrative Claims Versus Objective Clinical Data, Rhee, C, Murphy, MV, Li, L, et al. Jan 2015.
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The impact of an electronic medical record surveillance program on outcomes for patients with sepsis, McRee, L, Thanavaro, JL, Moore, K, et al. June 2014.
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Other Resources

Recommendations from the NSDTI roundtable.
In January 2022, Sepsis Alliance hosted the inaugural roundtable convening of the National Sepsis Data Trust Initiative. This was the first in a series of meetings during which expert stakeholders will discuss the long-term strategy of NSDTI and the eventual creation of a data trust. Click below to view a summary of the group’s recommendations, including rationale, proposed governance principles, and stakeholder roles.

 

 

 

 

 

Downloadable NSDTI overview.
Check out this two-page overview of NSDTI’s goals and vision. Click below to download!

Panel Discussion: Sepsis Patient Data: From Silos to Solutions
At the 2020 Sepsis Alliance Summit, a panel of experts described the value of better data, and shared their lessons and insights. U.S. Representative Mikie Sherrill (D-N.J.) announced her intent to propose legislation to help CDC and states develop the backbone of a national collection of sepsis-relevant data. To view a recording of the discussion, click here.

California Department of Health Care Access and Information Sepsis Data Visualization.
This data visualization from California presents patient information on in-hospital and 30-day mortality, length of stay, and charges and payers for severe sepsis hospitalizations from 2013-2020. These data can teach us a lot about sepsis in California—discover more by clicking below.

 

 

Sepsis Resources

As the founding sponsor of NSDTI, Sepsis Alliance is working to save lives and reduce suffering by improving sepsis awareness and care. Working in all 50 states, Sepsis Alliance is the first and leading sepsis organization in the United States. Its vision is a world in which no one is harmed by sepsis. Learn more about sepsis, including sepsis basics, upcoming events, and how to get involved.

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